Fading

20 01 2010

I had a bad dream last night. I saw you walking down the street and yelled out to you. You didn’t hear me, so I thought. I continued to yell, even calling you Jack. You turned slightly, looked right into my eyes, and continued on until I couldn’t see you anymore. Then I woke up and wrote this.

One sister calls to tell me the doctor told you to your face that you are in the advanced staged of Alzheimer’s. How you sometimes forget who your wife of 28 years is.

Another sister calls and tells me that you took her into the hallway to question her about photographs that have been hanging on your walls for years and that you are upset that they keep telling you can’t drive anymore, even though you probably haven’t driven in a few years.

The last time I came to visit at Thanksgiving, the man who never had a hair out of place, had on a slightly wrinkled shirt and some hair sticking up in the back. You kept asking me the same questions over and over again.

I finally am starting to accept it. You are fading away.

My mind is racing with moments from my childhood with you.

I don’t remember much, since you moved out when I was 5, but the moments from our “every other weekend visits” are branded on to my memory and can never be removed.

Sleeping in your soft white undershirts because they always smelled like you.

Your hand pretending to be a tiny monster reaching around to the back seat as you drove trying to grab my feet and making me giggle so hard.

Letting me comb and style your thick grey hair when I was a little girl while you sat on the couch and watched t.v.

Dancing little jigs in the kitchen and saying silly things to make me laugh.

Seeing the looked of embarrassment on your face when I yelled out, “My dad is old! He’s 43!” at your apartment pool.

Hearing you laugh when you tell the story about how during a party you had in your “single” days, when I was SUPPOSED to be asleep up in the loft, I dropped a message down saying, “Help, I’m being held prisoner.”

Hating you when you refused to let me stay with you when Mom remarried and moved to South Carolina.

Feeling bad for hating you when I grew up and realized it was the best thing for me.

Hearing in your voice how proud you were when I told you I was going to be a pharmacist.

Seeing the look in your eyes when you saw L for the first time after we got home from China and visited.

Remembering when you almost died after surgery two years ago that I went to the waiting room to write you a letter explaining what you meant to me. Someone interrupted me to tell me you had woken up and I tore it up and threw it away.

I try to act like I don’t care about what’s happening, because I’ve always been hurt that you seemed closer to my sisters than me. I’m sure they sense it on the phone when they talk about you, and probably think I’m cruel.

But I cried last night, because I’m scared of losing you without you knowing how I feel.

I’m mostly scared that you may be scared.

I’m worried every time I call you that this will be the time you won’t remember who I am. I won’t hear the familiar “Amy Louise!” that makes my eyes roll and my heart smile.

But there are a few things I want you to know, before you fade away from me, Dad.

Some of my favorite things about myself came from you.

My daughter likes to sleep in my old soft t-shirts because she says they smell like me.

She giggles when I’m driving and reach my hand around like a tiny monster to grab her feet.

We like to sing silly made up songs together.

We dance little jigs together in the kitchen and crack each other up.

She may not be blood related to you, but I see your expressions and actions come through her.

I’ll be driving down with L to see you this weekend. You sound excited and that makes me happy. I plan to tell you a lot of things that I never have, I just hope you truly understand.

Don’t fade yet.




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7 responses

20 01 2010
Betsy

You brought me to tears. It reinforced for me that it is not the big important things that make so much difference, but the daily joy that makes life worth while. Thanks for pointing out that there are many things that can’t disappear because they will forever be a part of all of us. Now I’m gonna go cry some more.

21 01 2010
Mom

I love you, and I cried too.

22 01 2010
Bob Knight

WOW !!! I honestly do not know what to say …… that is a 1st.

25 01 2010
Valerie

So sad!! I’m sorry your family has to experience this. Beautiful writing.

3 02 2010
Candy

Oh, how I understand your feelings. It was Thanksgiving a few years ago that I realized my Mom couldn’t figure out where I fit into her world. I don’t say “remember” because I could see in her eyes that our souls still connected. It remained that way until I lost her in August 2008. After watching Mom’s physical pain go under treated at a nursing home despite my strong advocacy as a Registered Nurse, my efforts go in that direction now. As a pharmacist, you can certainly understand my concern. Our fragile loved ones are being too often sedated for agitation in lieu of pain assessments and treatment. Please visit my new blog and let me hear your thoughts on this. I know the heartbreak you are experiencing. My best. Candy

17 02 2010
Belinda

I lost my mother in December 2009 to this horrible disease…it is so cruel and takes your dignity away…she did things that had she known she was doing she would have crawled in a hole…oh some of the stories I could tell. I miss her so much, at least she never really forgot me. In the course of a visit she might forget for a moment, but by the time I left she would come back to me and remember. That’s priceless!

I love you mom…

17 02 2010
Candy

Dear Belinda,
My heart aches for you, for your loss is still so fresh. I, too, adored my mom, and still grieve daily over my loss 18 months ago. How I remember those moments that we ALL could have crawled in a hole! On a visit to the ER, Mom commented rather loudly – “that’s a fat woman!” She would have been appalled to know she had said this. I looked at the lady and silently mouthed “I’m sorry”. Her face soften, she smiled, and I knew she understood. We were so blessed to have these precious women in our lives – now may they rest in peace.
http://www.StopPainInDementia.wordpress.com

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